“Why are you doing this?”
“I am not doing this, Ade. Life did it to us. We don’t have a future together.”
“Of course, we have a future together. We are getting married.”
“We cannot get married, Ade. Your genotype is AS and so is mine, we can’t risk it.”
“There are treatments. I’ve heard of things parents can do to avoid having a child with sickle cell.”
“There are no guarantees. Besides, even if they work, such things must cost a fortune. We can’t afford it. I don’t want to have sickly children. I don’t want to do this to any child. I won’t.”
“If you love me…”
“It is because of that love that I want better for you. Better for me. Better for the children that are coming. Love is not just a feeling, Ade. It’s also a responsibility.” Remi was heartbroken but she knew she was making the right decision for both of them. “It may look like I’m hurting you now, but in future you will be grateful I did this.”
Touching his hand one last time in a gesture of affection, she walked away.
A couple with genotype AS are likely to have a child, or children, with the sickle cell disease. People with sickle cell disease suffer a lot of pain all through their lives and some die young.
If you find yourself in Remi and Ade’s position, will you walk away?
Or is love worth the risk–bearing in mind the child bears that risk in the biggest way?
On a personal level, I have expressed the secondary stress of sickle cell disease and watched, and still watch my sister and two of her children go through this pains. I would not want that for any child of mine.
Share your thoughts.